A Fact: is alive

gwyN's Friends

11:56 PM ET 03.16

Views: 887
Comments: 3

Guys-Sorry I havent been around much. And this is a little long. I am sorry. But I need some help to make a little noise. Gwyn isnt getting better. The tumor has now proven to be agressive.Some of this many of you know- some of this, you dont. So forgive me for a moment.The Fort Wayne Police Department and the Fort Wayne Fire Department have teamed up to do a benefit hockey game for my four year old daughter Gwyneth. She has a condition called Neurofibromitosis type 1. Anywhere there is a nerve in her body she can grow a tumor. Heart problems,…

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Chasing Down a Cure

01:31 PM ET 06.03

Views: 1489
Comments: 0

Thank you so much for stopping by!
This is for my daughter Gwyneth (a.k.a. "Gwynie").
Gwyneth was diagnosed with type 1 Neurofibromatosis just a few months ago. As of now, my daughter is only two and a half.
As those of you know that are aware of this disease and its effects- she has an uphill battle ahead of her, for perhaps even the rest of her life. You see, Type 1 Neurofibromatosis causes not just developmental delays in a young child- but it causes nerves in the eyes, spine, and brain to tumorise. She can also develop visible tumors on her skin, bone abnormalities, and heart…

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Update on my daughter

01:22 PM ET 06.01

Views: 3488
Comments: 0

Well, thank you all for your well wishes and prayers. They are greatly appreciated.... Gwyns visit to Riley went pretty well. Basically they did confirm what we already knew. She does indeed have Neurofibromatosis I and she does have tumorous "gliomas" on her optic nerves. That being said, she is quite an amazing child and is doing very well. Due to the sensitive placement of these tumors we cannot know if they are cancerous or not. Nor are they in a placement where surgery can be performed with out severe risk to the individual. …

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Mondo Jay | about 1 year ago

I like it when the girls are back!

Miguel#94 | about 1 year ago

Hey, man just doing my once a year check in at FN. I hope this year finds your daughter doing well, and the rest of your family. We should be able to enjoy this season as Tiger fans, anyway, and hope you make some games in FW. http://burrilltalksbaseball.mlblogs.com

ChiSoxFan | about 1 year ago

Yeah, our suckage is starting to decrease.

ChiSoxFan | over 2 years ago

Yeah man. You could have at least said the Sox suck or White Sux or something. Don't compliment my team ever again.

A Fact: is alive | over 2 years ago

Good morning everyone! We reciently have recieved overwhelming responses via email for another way to donate if someone cannot make it to the hockey game. That said, I have added this web link to the note here as a pathway to paypal where you can donate directly to Gwyn and her account with a safer and more secure method then sending a check or cash in the mail! Thank- you all again for all of your support! It has been amazing to see all of this happening around our little girl. And we cannot thank you all enough. God Bless! Gwyns Mommy and Daddy https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=YVH2VRH7CQWB6